From NormalMoments.org:
Everyone deserves this kind of support and before she died, I promised my daughter that I would help make sure everyone has the opportunity.
Normal Moments is here to help.
Patricia Fragen
President & Founder
I remember coming home with my daughter from Philadelphia when she was 5 months old. We had flown her up with an IV placed in her arm - she had spent 2 weeks fighting an infection after a liver biopsy at the children's hospital in Tampa and was shot up with enough antibiotics to allow us to travel to Philly to continue her care. We flew with her to the Children's Hospital of Philadelphia where she was placed on a transplant list and given a PELD score (Pediatric End Stage Liver Disease Score which is an estimate of how long the doctors believe you will live)...My husband and I learned that we did not match our daughter and we could not donate a portion of our livers...our lives were turned upside down.
Upon arriving home we had a ton of mail. I will never forget one piece of mail. It was a notice from the management company (we rented) letting us know that they were about to start an eviction process. We had paid our rent...that was not the problem. The problem was that we had received a violation from the HOA because our grass had not been edged. We had made arrangements to have our lawn mowed but it was not edged and we were not home to see that this had not been done. We were sleeping and eating next to our daughter in the hospital. Any HOA violation was considered a reason to evict...if we had arrived home 2 days after we would have arrived home to an eviction notice on our door. Our baby was dying and we would have been evicted because of the {grass}. If we had a "David" our world would have still been in shambles but some of the stressors we lived through were everyday stressors that we could barely cope with simply because we could barely breathe.
There are times in our lives that we simply need to be held up...and times in our lives that we need to hold someone else up....
For more information about this amazing program please visit www.normalmoments.org.
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